August 10, 2001
We have completed our program of appointments at
UCLA and have an "answer" and a direction for the future for
Luke.
The short "answer" is that Luke has
global developmental delay and that the treatment for this is to get
speech therapy, occupational therapy and go to a special preschool.
The doctors did not find any physiological cause
for Luke's growth problems in their testing. Because he grew two inches
last year and tested over the passing level for growth hormone, the
endocrinologist wants to wait another year to evaluate his progress. We
didn't revisit the gastroenterology side because extensive workups had
been done previously without showing anything abnormal. The neurologist
said that he couldn't see anything special from Luke's CT, MRI and EEG
scans and referred him to a child psychiatrist.
This doctor said that Luke is clearly not
autistic (an autistic child shows delay in one or two areas, esp.
social, whereas Luke is delayed in all areas including physical growth).
She recommends Luke go to a special preschool where trained workers can
give him individual attention and help him to develop. This doctor is
from Israel and says that the special preschools in Israel are better
than those in CA, however they are usually in Hebrew which is not ideal
for a child like Luke.
She referred us to a child development doctor who
confirmed the earlier analysis and gave us the term "global
developmental delay" to describe Luke's condition. She says she has
seen lots of children similar to Luke and with no apparent physical
cause. Luke's delay is "global" which means in all areas -
speech, fine and gross motor movement, social and problem solving. The
doctor evaluated Luke as being at the level of an average 2 to 2 and a
half year old (he is almost 3 and a half now). She also recommends
therapists and special preschool for Luke. She says it's impossible to
tell what this could mean for Luke long-term.
We have reason to be encouraged. We've watched
Luke continue to develop a good deal this summer. He is talking more and
expressing more advanced ideas
("Daddy...go...hike...mountain...Luke...go). He is still small
(20.5 lbs buck naked this morning), but his appetite has been better the
last month. In the area of listening and learning, we think we see
progress as well.
Our plans are to return to Israel after the birth
of our third child (ultrasound this morning shows a 7 lb. happy kid
correctly positioned), due Aug 26. Then we'll seek out some specialists
to help Luke - specifically a language therapist (native American
English speaker, possibly we can find one in the next town over from
us), an occupational therapist (this is someone who works with his motor
movement, helps him to learn to dress himself, etc.), and a special
preschool. I expect the last to be the most difficult. They have good
ones but they're in Hebrew and they're also probably distant from where
we live and driving into Jerusalem on a regular basis to drop off and
pick up is an unhappy prospect. We'll also continue to monitor Luke's
physical growth for possible future growth hormone testing.
A few specific ways you can pray for us and Luke:
1. That Luke's physical and developmental growth
would increase (ultimately to being "caught up")
2. That we can find the best therapists and
program for Luke - best in terms of what's helpful to him, and
affordable and logistically feasible for us
3. That if there are other medical tests that we
should be doing that these would be brought to our attention (UCLA tells
us now we've done all we can). I'll be searching out resources on the
Internet to see if we can learn more about similar children and things
we can do.
We will keep you informed of progress but on a
less regular basis than this summer. We do have absolute confidence in
the Lord and his perfect plan for Luke and us, but we want to make sure
that we are faithful to pursue all the means that the Lord has provided
for us. We so much appreciate your prayers for us and have seen much
evidence of God's gracious hand upon us in the testing and travels this
summer.